Saturday, February 14, 2009

15th week on brivanib

I fall asleep almost immediately after I swallow, at 10pm, the four (mega) pills.
I am thirsty, especially during the night.
My mouth is dry. All the time.
I am spaced-out (ok, more spaced-out than usual).
Even favorite foods have lost all the appeal.
I write to-do lists and then I forget to look at them (Zé will say that that is my normal...)
Fatigue (this is hard to tell if it is a side effect since I no longer have a baseline, I have been feeling tired in the last years).

All these signs have been pointing to the fact that I am on the drug and not on the placebo. Yet, I was not a 100% convinced, until yesterday. If the drug company does a random selection I was bound to get the placebo. That was what I thought, based on the fact that I never win anything.

However, yesterday, when I had my vitals taken - blood pressure continues to be high, weight continues to decrease - I became certain that I am still on the drug.

Yesssssss. I am one of the lucky ones.

When I do the decisive CAT scan, in three weeks, I might have to stop Brivanib, since the tumor growth has been close to 20 percent. Still I am happy. At least the pattern where my tumors did not respond at all to the drugs has changed. Who knows, perhaps the tide has also changed.

9 comments:

tapioca said...

fico feliz se tu estás contente.
a "tide" está mesmo a mudar!
Quanto ao café.......... eu também sou bastante exigente. eh eh eh
um grande beijinho

Michelle said...

I gained 2 pounds! The placebo is making me fat!
I had my Pet scan today...friday results. Then I am going to chat with Dr Maki about it all.
xoxoox

tapioca said...

"That was what I thought, based on the fact that I never win anything."
Acho que não estás a ser totalmente correcta! Ganháste um marido espectacular, umas filhas DE MAIS, uma lista longa de amigos/irmãos que te adoram.
Beijinhos

Elsa D. said...

;-)
estava a pensar no Casino Lisboa :-)
beijinhos

Pipas said...

Vai dar certo....
beijocas cheiiiias de saudades
Pipas

Anonymous said...

I will start this trial in a week. I was on AMG, and ended up getting the placebo for 7 months, then I got it twice, but it didn't work, so now I am starting this. What can I expect?

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