living with a sarcoma

Here you'll find out how I deal with my recurrent retroperitoneal liposarcoma.

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Saturday, October 25, 2008

Maya e Cláudia

Posted by Elsa D. at 8:36 PM 3 comments:

Labels: My Photos

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My Sarcoma Story

If you are new to this blog, you may want to start with this article I wrote for Macau Closer in February 2007:

How I Became a Lab Rat (click here)

Diagnosed with a retroperitoneal liposarcoma in 2000.

Ten surgeries (one a year).

Chemo cocktails: Adriamycin and Ifosfamide. Taxotere and Gemcitabine. Carboplatin.

Clinical Trials (alphabet soup): ET743, AP23573, ARQ501, BMS354, XL880, IPI504, CS7017, SCH727965, PM00104, BMS-582664, GDC-0941 and R7112, STA-9090

Currently on Doxil

Feel free to email me: elsa.eu@gmail.com

Elsa D.
Maya
Ze
fylisfe

What is a clinical trial?

Dr. George Demetri, Director of the Center for Sarcoma and Bone Oncology at Dana-Farber

Frequently asked questions about sarcoma, answered by Dr. Murray F. Brennan, Memorial Sloan-Kettering Cancer Center.

Dana-Farber Cancer Institute
Memorial Sloan-Kettering Cancer Center
Dr. Demetri's site
MD Anderson Cancer Center
Kristen Ann Carr Sarcoma Forum
Sarcoma Alliance
Sarcoma Alliance Blog
Sarcoma Foundation of America
Sarcoma UK
The Liddy Shriver Sarcoma Initiative
NYtimes Well blog
Paging Dr. Gupta
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My Blog List

Zé
Filipa
Maya
Michelle
Marco
Kathy
Maura
Rajiv

Ring the bells that still can ring,
Forget your perfect offering,
There's a crack in everything,
That's how the light gets in.

Toca os sinos que ainda podem,
esquece a dádiva perfeita,
existe uma brecha em tudo,
é assim que a luz penetra.

Leonard Cohen

Bone Marrow Donation / Doar Medúla Óssea

You can make a difference!(click)

Summer 2008 (in this video I was having fun with one of my scans, the music is by Brazilians, Seu Jorge and Ana Carolina).

Dr. Maya and Dr. Bertagnolli

Why Blog?

1 I needed a "garage" for my cancer stuff. I forget easily and sometimes I want to remember.

2 For my friends. Aware of how they worry about me and of how terrible I am when it comes to staying in touch, I want them to know that I still feel them lifting me up.

3 In case a net-surfer with a sarcoma, particularly a retroperitoneal liposarcoma, finds me, I hope that he/she doesn't feel so alone. And knows that, no matter what, everything will be alright.

4 And if you just happen to stumble upon this blog, feel Welcome.