Left home at 6:50 am this morning for Dana-Farber and will not leave Dana-Farber before 8:30 pm. Loooong day.
But Suzzane came by to visit and Elsa had about five meals, so it was worth it. She will be getting the "patient who would not leave" award today.
One of the highlights of the day was Elsa meeting Dr. Demetri who oversees the research that she has participated in over the last years. He knew her right away.
Here you'll find out how I deal with my recurrent retroperitoneal liposarcoma.
Wednesday, January 5, 2011
Good News
Hello everyone,
I did a Ct scan on Monday and the results made me very happy. My pain is still a pain to deal with (pun intended), but I am taking each day as it comes. I am struggling to gain weight, but it seems nothing works. I eat and eat, but my weight remains at 34 to 35 Kg.
I am at Dana-Farber today for chemo (Doxil). It's going to be a long day, but I am ready for it. I hope the New Year is working out well for everyone.
I did a Ct scan on Monday and the results made me very happy. My pain is still a pain to deal with (pun intended), but I am taking each day as it comes. I am struggling to gain weight, but it seems nothing works. I eat and eat, but my weight remains at 34 to 35 Kg.
I am at Dana-Farber today for chemo (Doxil). It's going to be a long day, but I am ready for it. I hope the New Year is working out well for everyone.
Saturday, January 1, 2011
Dear friends,
I know many of you worry about me and often come here hoping to hear good news. Forgive me for this long silence. The last months have been the hardest months of my illness. I have been living with constant pain and unableto regain the weight I lost after my last surgery. Most of the time, morphine is not enough to make the pain go away, and when it does, it makes me sleepy. It's been a very difficult time, but I hope you all will have a good 2011, the same I hope for myself.
I know many of you worry about me and often come here hoping to hear good news. Forgive me for this long silence. The last months have been the hardest months of my illness. I have been living with constant pain and unableto regain the weight I lost after my last surgery. Most of the time, morphine is not enough to make the pain go away, and when it does, it makes me sleepy. It's been a very difficult time, but I hope you all will have a good 2011, the same I hope for myself.
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