living with a sarcoma

Here you'll find out how I deal with my recurrent retroperitoneal liposarcoma.

Thursday, February 5, 2009

Dr. Brennan operates Justice Ginsburg (click)
Posted by Elsa D. at 3:37 PM

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My Sarcoma Story

If you are new to this blog, you may want to start with this article I wrote for Macau Closer in February 2007:



How I Became a Lab Rat (click here)





Diagnosed with a retroperitoneal liposarcoma in 2000.



Ten surgeries (one a year).



Chemo cocktails: Adriamycin and Ifosfamide. Taxotere and Gemcitabine. Carboplatin.



Clinical Trials (alphabet soup): ET743, AP23573, ARQ501, BMS354, XL880, IPI504, CS7017, SCH727965, PM00104, BMS-582664, GDC-0941 and R7112, STA-9090



Currently on Doxil



Feel free to email me: elsa.eu@gmail.com


  • Elsa D.
  • Maya
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  • What is a clinical trial?
Dr. George Demetri, Director of the Center for Sarcoma and Bone Oncology at Dana-Farber
Frequently asked questions about sarcoma, answered by Dr. Murray F. Brennan, Memorial Sloan-Kettering Cancer Center.
  • Dana-Farber Cancer Institute
  • Memorial Sloan-Kettering Cancer Center
  • Dr. Demetri's site
  • MD Anderson Cancer Center
  • Kristen Ann Carr Sarcoma Forum
  • Sarcoma Alliance
  • Sarcoma Alliance Blog
  • Sarcoma Foundation of America
  • Sarcoma UK
  • The Liddy Shriver Sarcoma Initiative
  • NYtimes Well blog
  • Paging Dr. Gupta
  • Being Cancer
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Ring the bells that still can ring,
Forget your perfect offering,
There's a crack in everything,
That's how the light gets in.


Toca os sinos que ainda podem,
esquece a dádiva perfeita,
existe uma brecha em tudo,
é assim que a luz penetra.


Leonard Cohen
Locations of visitors to this page

Bone Marrow Donation / Doar Medúla Óssea

You can make a difference!(click)
Summer 2008 (in this video I was having fun with one of my scans, the music is by Brazilians, Seu Jorge and Ana Carolina).

Dr. Maya and Dr. Bertagnolli

Why Blog?

1 I needed a "garage" for my cancer stuff. I forget easily and sometimes I want to remember.

2 For my friends. Aware of how they worry about me and of how terrible I am when it comes to staying in touch, I want them to know that I still feel them lifting me up.

3 In case a net-surfer with a sarcoma, particularly a retroperitoneal liposarcoma, finds me, I hope that he/she doesn't feel so alone. And knows that, no matter what, everything will be alright.

4 And if you just happen to stumble upon this blog, feel Welcome.
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