living with a sarcoma: A VOZ DA SAUDADE

Acabei de ver A Voz da Saudade, um documentário de Joaquim Vieira. Se nao viram, quando passou na RTP, nao percam.

Querido Joaquim, ainda estou emocionada. Adorei. Obrigada pelo l ink.

My Sarcoma Story

Diagnosed with a retroperitoneal liposarcoma in 2000.

Nine surgeries (one a year).

Chemo cocktails: Adriamycin and Ifosfamide. Taxotere and Gemcitabine. Carboplatin (with Rosiglitazone).

Clinical Trials (alphabet soup): ET743, AP23573, ARQ501, BMS354, XL880, IPI504, CS7017, SCH727965, PM00104, BMS-582664 and GDC-0941.

If you want to know more details, read the article below.

How I Became a Lab Rat (Macau Closer, February 2007)

At the moment, I am recovering from surgery #9 and getting ready for clinical trial #12

Why Blog?

1 I needed a "garage" for my cancer stuff. I forget easily and sometimes I want to remember.

2 For my friends. Aware of how they worry about me and of how terrible I am when it comes to staying in touch, I want them to know that I still feel them lifting me up.

3 In case a net-surfer with a sarcoma, particularly a retroperitoneal liposarcoma, finds me, I hope that he/she doesn't feel so alone. And knows that, no matter what, everything will be alright.

4 And if you just happen to stumble upon this blog, feel Welcome.

living with a sarcoma

Sunday, November 16, 2008

A VOZ DA SAUDADE

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